This blog has been set up for our son Benjamin McDaniel. Ben was diagnosed with multi-focal epilepsy when he was 9 months old. He has suffered a variety of seizures ever since and they have increased in frequency. Yesterday he turned 4 yrs old.These past few years have been an emotional roller coaster ride complete with ambulance rides, hospitalizations, buckets of medications & hours of therapy.
Through it all we've had many people helping us on our journey. Amazing physicians & specialists, dedicated & supportive therapists & teachers,loving friends & family. In a few weeks the next step in our journey takes us to Johns Hopkins Hospital for admission into their ketogenic diet program. This will require a week long in-patient stay. We set up this blog so that everyone who cares about Ben can check on him while he's in the hospital. We'll update the blog daily, if possible. We value all of the love, prayers & support from the wonderful people who are a part of Ben's life. We look forward to hearing from you all & appreciate your continued, love, support & prayers.
7 komente:
Please let me know if there is anything I can send along with Sue to help with this journey..toys..video's..(prayers are a given!)..a set of twins to keep him occupied :-) What an amazing strong family you are!! And such an inspiration! My hope is that love and laughter will get you through.....
Great pictures of Ben's party. Sorry we couldn't be there. It looks like everyone had alot of fun.
Aunt meggy its Em I think that this is a great websote that you set up for Ben! i think that many people including me can tell that you really care about Ben! See you at the lake! Love you say hi to everyone for me!
I meant website!
Let us know if we can do anything. Great website! Love, Kelly and Jeff
Love you Ben!!!!!!!!!!
Hi meg, What a great idea this blog is. I was not quite sure what a blog was, when you described it.
(being somewhat tech challenged myself).
I think a great time was had by all at Ben's big 4 bash. Ben was Tooo cute, swimming around the pool with his big grin. Thanks for having us
Love Deb
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