There's no place like home...There's no place like home...

We finally made it home. YEAH! We got into town about 7:30 am this morning & after picking up some keto friendly groceries for Ben, we got to the house by 8:30. It was so wonderful to get back home. We've been so lucky to have Carrie & her mom staying at the house. It was such a relief to know that someone was at the house & that we didn't need to worry about things while we were gone. Carrie & her mom really out did themselves and had the whole house spic & span (way cleaner than I left it for them) and they left flowers & gifts for each of us. What a lovely homecoming. And I was already feeling a little guilty about coming home so unexpected & so early. We hadn't planned on coming in till dinner time on Friday but it's been up & down since Ben's first meal on Wens night so we just wanted to get home. After we picked up Grace at my parents place in Deep creek, we just took a quick nap & then hit the road by midnight & drove straight through the night

Ben's had intermittent vomiting & flushing of his face & limbs. He is also at times fairly irritable & is not drinking enough between meals. So of course he's still really wiped out. He likes the ketogenic eggnog but the heavy fat in the diet really upsets his stomach. Since wens night Ben has only been able to eat 2 meals & keep it down. The folks at JHU told us that all of this is to be expected. It's really hard for the body to switch from glucose metabolism to fat. They promise that he'll get used to it within the next week. Ben has been asking for his favorite foods (all not allowed on the diet) and when we tell him no, he refuses any other food. The JHU folks tell us that this too will change over the next week, he's just testing the ground rules. We'll see what happens. After only a few days on the diet, Ben already seems more calm & focused & I know he's been using more novel words & more sentences.
I'm just determined that we'll quit this diet only b/c it's not working for Ben, not b/c he won't eat it. Especaiily now that we know it's worked so well for other kids with his type of epilepsy.
I spent 3 hrs this evening making keto snacks, keto yogurt, and freezing butter. None of the recipes were difficult just a little time consuming. With a little practice I hope all the weighing & measuring will become second nature.

Thanks again for all your support, it means alot. Keep in touch.

-Meg